The Sasha Bella Fund For Family-Centred Care
In honor of SickKids patients, families and staff and our Sasha Bella, the first daughter of Pamela Stein and Jonathan Blumberg, president of The Wire
Sasha was born June 6, 2004. She lived with gusto with her Alagille Syndrome and pulmonary atresia, bravely tolerating many interventions at SickKids. At 18 months, just as she was learning to walk, Sasha suffered a series of serious unexpected complications following a 2nd cardiac surgery. After five months at SickKids, we brought her home for five precious weeks with family and her second birthday. Sasha died peacefully on June 20th, 2006.
Family centred care
Care that listens and engages the child and family is not only respectful but also necessary for diagnosis, care and patient safety. Empowering parent expertise in their child helps children, families and staff. And continuous improvement involves parents throughout the hospital in policy, education, program development, implementation and evaluation, facility design and even hiring.
Pediatric palliative care
Bringing Sasha home to die was a positive outcome for Sasha and her family after 5 months of diminishing quality of life in hospital. As SickKids researchers discovered, only 8-12% of Canadian children needing advanced palliative care receive the resources. We support SickKids work with the national TRAC-PG network through an Innovation Fund into palliative research and an annual research symposium.
“At Sick Kids the safety of patients, staff and visitors is our number one priority.” (SickKids website)
Patient safety requires leadership, programs and continuous evaluation. Effective communication with patients and families, within the staff team and between medical teams is key, as is building a culture that encourages disclosure of medical error. The fund supported a first Inter-professional Practise Education Weekin 2007, created a hospital-wide IPP award and supports the annual Families As Partners In Patient Safety symposium.
Support SickKids Hospital
View a list of low cost, high impact initiatives the fund worked on with SickKids and the Foundation.
Donate online (type Sasha Bella Fund when asked “Please assign my gift to the following SickKids Foundation Fund”) or call 416 813 6166 to speak to a member of SickKids Foundation.